More Pictures! I just cant resist!

Its 9pm...these are pictures from this morning..Madison continues to fight her sleep and still continuously bringing herself to a sit...LOL!! Its getting tricky to leave her alone on her blanket!

when she makes this face..hahaha its short lived and to catch it....priceless.

She was actually touching her toy!
When her PT came today I was dyin for Madie to show her skill! NOPE...not untill the very end of her session did she finally get herself into a sit..when she had spent the most of the day getting herself up and falling..over and over.

If at first you dont succeed try try again

Well my baby girl..you keep on tryin and tryin...and TRYIN...and sure enough Madie;s new favorite thing...pushing herself up to a sit..here are some of the steps she takes to get there. In the meantime as I try to type she is doing this over and over and THUD she falls over..but can remain in her seat for more than a few seconds! I have to go and fix her so she is "within the blankets"

Now I always hold my breath when Madie does anything new..but honestly she has been rolling forever and getting herself into the "frog" I call it..only the past couple weeks has she been doing this! the other times madie could sit she was on steroids..Well I sat her up and she stayed. She herself is getting herself into position THIS time!!

Now my dreams of running skipping and jumping are still on the back burner for sure..but gee wiz! Milestone???? Its about stinkin time!!
She has therapy in 30 minutes and she better not be too sleepy..cmon show your skill madie!! These kids make liars out of us when you want them to show off eh??

Will Madison beat the odds..ya never know. Anxious as always for Detroit with hopes that she is not Infantile Spasm-ing anymore and other than OH JUST THAT...things are goin.
Keep faith that madie will continue to progress and "get there" somehow!!! I still cannot fathom that her pre-school will be happening in OCT!! (when she turns 3) Went to of all places (Im such a trader) Wallmart and found her some cutie slip on sneakers so she can haev shoes in school...oh something tells me she will not like having those on her cutie tootsies!
Well enough of my bragging I am sure to jinks myself.
:) Hugs
me

Good Things!

Oh my madie...she is somethin...Just yesterday by the way...;) she pushed herself up to a sit!! Ok so a wobbly sit but she was UP..tryin and tryin.. She continues to seem to be moving forward..I am on the edge of my seat wondering what will come or go next..will she continue to move forward? Are these jerks that plauge her all day Spasms?? they are like quick stiffenings..arms and legs involved and her eyes go weird for a second then she is fine..
I am worried alot about them but she seems to be doing OK so far so good...Newest thing is being more accepting of things in her hands..she loves her krinkle paper and sliming my face as she grabs for noses and cheeks...she seems to be more accepting of things in her mouth as well...licking things and biting things..NOT holding them to her mouth only sometimes..BUT doing it!! And the giggles...Ohh if I could bottle that giggle..she certainly knows funny. Usually in play with my husband or I or funny noises and faces..cutest.
The vocalizations are getting pretty funny...of course no words but boy she is loud..AHHHH OWWWWWW EHHHHH pretty funny.
I hate to brag about any of this...Ive seen if before folks. madie has had the ability to sit 2 times..BUT she was not using her muscles as she does now..more a glazed ballance as drug after drug was pumped in her tiny frame...Ive seen regression is all I am saying. Mostly with her personality...from happy to DUHHHH drugged.
She is doing well...best she has been in along time! keep it up Madie!!
Her Appetite has been BIG...ok so still a fuss for solids...BUT bottle wise she is up there...4 and a half yesterday..with Duocal is a load of calories!! GROW MADIE GROW!!
Infantile Spasms...a word I was certain was out of my vocabulary..could possibly be back?? Do they come back?? its been at least a year since we have been dealing with spasms..her "new" horrific seizures we have not seen one in a few months...I used to have a video but eh...deleted it..a breakthru uh...I wanna say in May...dunno dont quote me on that one...but none since.
Detroit is carved in stone now..August 15th we fly out..spend a day with family and head to the hospital for the looooooong EEG on the following Monday. We will be home on Wed after all the tests and doctor visit are said and done.
Tonight my brother in law comes over and we have a mini grillin and chillin..hoping to get my lil trouble maker to bed early!
Wine Me!

PS

PS...look what fell yesterday afternoon in CT!!

It sounded as if we had a tin roof!

Yes that is my dumb self leaving my car outside durring all this! Hey, it was good exfoliating wash! Now where is the wax storm??

....and then comes crawling???

AHH@!!! this a good sign of mobility to come??? Will be plateau at this? Will she gain MORE strength and GO?? Oh gosh! I jumped from my chair at the computer and caught her just trying so hard! (hints my toes to the side...LOL)

Now allot if times I see the "oh..well at least he or she is doing this or that" and tend in a slump that my child cannot do the things that other kids can do..which I guess comes with the territory of a special needs child....
We plan on STILL camping and STILL going to the beach and STILL going on vacations and STILL living! WITH a challenge...Ohhh its tough for sure. "lugging" madie around and I still carry hopes that she WILL one day be mobile! I am still planning on donating her stroller to a family that cannot get one...whenever she DOES outgrow it..
Weathor or not she DOES get up on her feet one dya we deal with it day by day and love her no less.

We are heading to Detroit on my Birthday August 16th..Flying out that Sunday and EEG on Monday and PET on Tuesday along with Doctor visit..then fly home Wed...By no means a vacation but much needed information into madies seizures. Which are still jerks at this point..:( and worrisome.

4th of July was pretty fun...we have missed out on fireworks since madie was born I think...or did we see them the first year she was here? id have to run that by hubby.
Food Folks and Fun were great as usual..It was pretty hot outside and I kicked myself for not going out on the boat but we had to get home...:( I was on the edge of my seat with Madies crying outbursts adn her teething...we were up half the night before with her screaming...Hubby was not in any mood to go to cottage but he was a trooper...I love you more for it dear!! :)
No other news I suppose as of now..just hangin..beautyfull day in CT FINALLY no rain for a whopping 2 days!!
Heading out to Tarje to spend 62 bucks on two more cans of DUOCAL...yumm! Oh and feeding therapy that I alwatys seem to forget about untill 15 minutes before we are suppoed to be there!
:)