Tuesday, June 23, 2015

Beach and Rambles

Here we are.
Oh how I love the beach. Its the most calming place.. I wish I lived at the beach so much! Cant really rent near the beach...SOmeday I hope to live near the beach I just love it. But who knows! Each time I go there I just soak it in....
A lot of appointments coming up for madie..each week we have one. Next week is GI and week after that is EEG and week after that is Ortho for her AFOs..in meantime summer school will be in full swing but till then she still has another week and a half. Not doing much this week feeling a little cabin fever and its been boiling hot outside not that I am complaining cause the winter was horrendous! Just a couple dog days and it will get more comfortable soon :)
The school year is out and second grade is done. One more year at her elementary school and its off to middle school...pretty freaky. Cant and wont imagine madie without her Para.. I have been itching to relocate sometimes but Ill see where life take me. I dunno...
All has been going I guess.. Had to have Dads car towed from my place yesterday the poor car is on its last leg... But miraculously STILL up and running just barely after the mechanic fixed the starter! Unbelievable! I wanted to tell him that if we were married a new car would be more feasible...LOL but nah... Ill keep my smart ass quiet. I hope he finds something...wonder if he would like a fine lookin dented 2007 civic? Just kidding... Yeah I thought the old car would certainly be the end...I stayed positive and kept hope! Nine lives that car has...nine lives!
The AAA tow guy has no teeth... LOL
ANyhooooooo... not much to ramble about today just feeling antsy as all hell. None of my neighbors had any mail in their mailboxes and I have one bill....LUCKY Me.
Ready for the weekend for sure.


Wednesday, June 3, 2015

SHoo Wee One Month!
Well here I am hangin in there!
Still no laptop but I did acquire a monitor that I can hook up to my broken screen laptop and EUREKA I am online with a keyboard. HA
In Madie magoober news she is getting big for sure and if your not a FB friend of mine I am sharing some pictures :) BUT first in news....
Adding TWO new docs into the mix...A G.I doctor and an Orthopedic Guy ;)GI is very important and hoping that when we go we will see SOME kind of weight gain...
I have to go into my shpeal....bear with me.. Part of me is anxious to GET her the G-Tube button and part of me is hesitant... I believe that the button will alleviate the stress of worrying that she is not getting enough nutrients... I will literally liquefy fruits and veggie and feed them to her...AND yes she STILL will drink her sippy which she is very good at! And loves her water and her occasional apple juice treat...Eating has been SUCH an issue with her...I am tired of her being on supplements...I want real food... And don't forget the terrible constipation! :( THEN there is the what ifs...what if her tummy totally rejects it and she vomits or she gets sick or she ends up with the tube forever? I look at her and of course to ME and Dad she is PERFECT and is certainly Dads physique lol Tall and skinny! But oh my baby girl.... I just look forward to meeting with the GI doc and all three of us talking about it and learning more about it and HOPEFULLY making the right choice. Been waiting awhile for this appointment! We both love Madie to the moon and back and just want to make the right choice... Baby girl needs nutrition! In the land of supplements she is SUPPOSED To have SIX boost essentials EVERY day....lucky on good days to get 4....so. yep. :(

THEN there is the Orthopedic.... Well this in not so scary nor is it a hard choice...we are going to get her fitted for AFO's on her feet...It will help give her extra support when she does her therapies...she just had no muscle tone and strength... when she bears weight on her feet her the back of her ankles bend out behind her.. So....hopefully in next few months we will have them.!

And in Mom News...well one day at a time! All is going. No earth shattering news. I think I have about a dozen tomatoes on my tomato plant! lol
Oh and how can I deprive you all any longer of some precious madie pictures!!
Be well everyone Ill keep you posted!!

Wednesday, May 6, 2015

nothin much


Things I dislike about my place: iTS DRAFTY. IT HEATS and hot waters with OIL.It does an awesome job heating outside for nearly 4 bucks a gallon.... The dryer is outside on the porch. Its COLD in the winter. there is one bathroom and its thru the kitchen and I have to sit sideways on the toilet....its that small.(the bathroom) The screen porch that contains my dryer leaks in the winter. It has two floors and is tricky with kiddo..
Things I like: Its got such character! Its sunny anytime of year. I have a cool clothes line. The VEIW from my room is AWESOME I want to soak it in when I look out... The grassy area is nice to sit on with madie and its peacefull. No one is ever home around me..It feels like a little cottage and I have also worked to spruce up the outside...the grass is mowed for me and I dont have to shovel...the outside is clean and newly painted and powerwashed..kept up well. And the rent is right. I make it work...Its the place I moved into when I was so scared and hoping it would just be a temporary place that all of what was happening wasnt real... Eventually I just made it home...I had too.
Bear with me I am loosing focus...Madie will not go to sleep and I am ADD....

Been worried about Madies Dad...newly diagnosed with kidney stones...as far as he knows anyway...an ultra sound shows nothing but he has all the symptoms..I dont know what to think but hes sick...my instinct wants to go take care of him and feed him all kinds of kidney flushing foods..lol hes hangin in there with 3 different meds...as he still goes off to work tomorrow to work outside all day. I really wish he would just take a few days..I still care about the guy! He has always worked his butt off...i hope to convince him to move closer someday but I wont press my luck. lol
I wanna say that madie and I will remain residents of our little town as long as we can...or if anything ever changes...ya just never know..lalalalalala .but I really like my town and its schools.Home Sweet Home..
I am runninng of. of battery and patience for this very below machine right now....I will blog more soon and keep all updated on how GI appointment goes...Im too tired to go into mt bg-tube shpeal or re load this page a third time...so much for switching internets...

hope everyone is well.
peace out homeslice

Monday, May 4, 2015


Ever have a possible melon plant\seedling pop up in the middle of your lawn? lol well I will watch it grow and let you know what sprouts up! there is a first for everything.
Well...anyhoo... madie is still the same...GI apointment bumped up till June for reasons unknown but we are still going!
Spring has finally sprung in my neck of the woods after what felt like a neverending winter the fresh air lifts my spirits and makes me sneeze.lol. I still love it! remind me to dust off my ceiling fan BEFORE I turn it on this year...lol true story.
Well a little lost in my thoughts today..I dunno...lil bug is ok she has long days at school but for most part gets thru her days..I went on field trip with her last friday to this small local museum in town that tells us all about how collinsville had a thriving Ax factory that still stands today but no longer makes axes of course..now just a bunch of hipster artsy people rent the space for studios...but the lil museum is kept going by some elderly folk who do small tours..I thought it was cool that the old workers used to reside in the duplexes that I rent now..
Madie got bored and grumpy.... we were unable to go to lower level cause there was no elevator.
Weekend was ok...got my grocery shopping done and prescriptions filled...bought a tomato plant and spruced up a little...just tried to keep busy and have a Jamie day...missed my lil side kick alot but was able to get stuff done...
I guess all else is going...I dunno..
Did I tell ya about the special needs playgroup? Miles and I went with Madie and it was run by her old Birth to Three therapist and we decided to check it out. What a turn out! II think she will soon need a larger space! I enjoyed it...and it was cool to do something the three of us..felt good :)
i guess that is all I have to ramble about today...yeah not too exciting...
hope everyone is well and I hope I get a laptop soon...donations are being accepted...LOL